Also On the Net

Lyme Cryme
http://www.lymecryme.com/
WE THE PEOPLE DEMAND
The health status of the entire World has been and continues to be compromised in several ways by combinations too powerful to be suppressed in the ordinary way.
In the early 70s chronic illness were not epidemic in our country unlike today with Fibromyalgia, Chronic Fatigue, Lupus, MS, and ALS and many other debilitating illnesses that have been linked to Lyme Disease as you will see from papers on this web site.
This Web Site contains published papers from both camps that show treatment failure and inaccurate testing. We therefore demand, both United States Houses of Congress to investigate Lyme Disease Diagnosis, Testing, and Treatment protocols currently under the Center for Disease Control (CDC), The Infectious Disease Society of America (IDSA), the American Medical Association (AMA), and the American Academy of Neurology (AAN).

Warnings
FDA Warns Consumers and Health Care Providers Not to Use Bismacine, also known as Chromacine - FOR IMMEDIATE RELEASE July 21, 2006

 


Educational Opportunities

School for New Learnming (DePaul University)- The Chronic IIIness Initiative
http://www.snl.depaul.edu/current/chronic.asp
Students with chronic illnesses such as chronic fatigue syndrome, depression, epilepsy, fibromyalgia, heart disease, lupus and rheumatoid arthritis, among others, may take advantage of the services of the School for New Learning’s Chronic Illness Initiative. This program was designed to help students who have had difficulty attending traditional programs because of relapses or unpredictable symptom flare ups. Scholarships are available. Students who are successful at completing School for New Learning degree requirements earn a DePaul University degree.
 
 
Insurance Information

Social Security Online
http://www.ssa.gov/disability
Information about the Social Security Disability Program
 
Handling Disability Examinations
http://www.cfsdoc.org/disabil.htm
 
 
New Ruling Should Improve Disabled CFIDS Patients' Access to Benefits
http://www.ssa.gov/OP_Home/rulings/di/01/SSR99-02-di-01.html
On April 30, 1999, the Social Security Administration (SSA) issued a ruling clarifying that persons with medically documented CFS can be found to have a "medically determinable impairment." The ruling provides guidance to disability claims processors for applying SSA policy to applications for Social Security Disability Income (SSDI) benefits that result from disability due to CFS. While the new ruling will hardly "open the floodgates" for CFIDS patients to garner disability benefits, it should make it easier for disabled CFIDS patients to acquire benefits at an earlier stage in the SSA appeals process.
 
West Nile Virus Related Web site

nationalatlas.gov
http://www.nationalatlas.gov/virusmap.html
Each week, the National Atlas will include a new series of maps resulting from ongoing West Nile Virus surveillance activities led by the Centers for Disease Control and Prevention (CDC). West Nile Virus has emerged in recent years in temperate regions of Europe and North America, presenting a threat to public health, equine health, and since 1999, the health of bird populations. The most serious manifestation of infection is fatal encephalitis (inflammation of the brain) in humans and horses, as well as mortality in certain domestic and wild birds
 

Lyme Disease-Related Web Sites


Lyme Disease Research Studies
http://www.columbia-lyme.org
Formally designated in 1994, the Lyme Disease Research Program of the New York State Psychiatric Institute is the first in the United States to focus research efforts on the neuropsychiatric aspects of Chronic Lyme Disease in adults and children.

Lyme Disease Risk Assessments
http://www.utech.net/users/10766/lyme.htm
Studies of Lyme disease done by the U.S. Army at various military installations from 1983 to 1996.

Lyme Disease -- The West Coast Connection
http://home.swbell.net/dsny1fan/LymeDisease.html
Educational site on Lyme disease as pertaining to the West Coast. Includes information on tick testing, finding a Lyme specialist and links to other useful sites.

European Union Concerted Action on Lyme Borreliosis (EUCALB)
http://meduni09.edis.at/eucalb/index.htm
This is a site for the European scientific community to document information on European LB and their progress toward standardization of medical terms, concepts and research.

The Pasteur Institute in France
http://www.pasteur.fr/english
This is an outstanding source of information on the microbiology of spirochetes. Included is the registration of Borrelia burgdorferi strains, substrainsand genetic codes. This is where Bb cultured from a lone star tick from Texas and another cultured from a flea from Texas have been characterized and registered. Information on other spirochetes and tick-spread diseases is available.

Iowa State University
http://www.ent.iastate.edu/ImageGallery/
Great site to view pictures and 2 second video of ticks and tick dissection, mosquitoes, lice, lady beetles and more bugs. This is an important viewing site.

Lots Of Links On Lyme Disease
http://www.geocities.com/HotSprings/Oasis/6455/lyme-links.html
Although this site is no longer updated, it still provides links to over 12,000 sites on the web with information about Lyme disease.
 
Chats
 
Lyme Disease Audio network
http://www.lymediseaseaudio.com
Lyme Disease News & Information in Audio...WOW! The Lyme Disease Audio Network is the place where you get the latest updates thanks to our LIVE Lyme Talks and also, through our prerecorded audio clips.
 
America Online
Patients and family support group. Monday nights at 8-9pm Eastern Standard Time. Keyword "Better Health" Equal Access Cafe. Most times there is a guest speaker. After the meeting some attendees create a private room to just chat.

 

Newsgroups
Bulletin boards, where anyone can post anything.

sci.bio.entomology.misc
This is an international Bulletin board (newsgroup) that is relatively new. It is a place where entomologists (scientists that study bugs) can post questions and answers.


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