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- Also On the Net
- Lyme Cryme
- http://www.lymecryme.com/
- WE THE PEOPLE
DEMAND
- The health
status of the entire World has been and continues to be compromised
in several ways by combinations too powerful to be suppressed
in the ordinary way.
- In the early
70s chronic illness were not epidemic in our country unlike today
with Fibromyalgia, Chronic Fatigue, Lupus, MS, and ALS and many
other debilitating illnesses that have been linked to Lyme Disease
as you will see from papers on this web site.
- This Web
Site contains published papers from both camps that show treatment
failure and inaccurate testing. We therefore demand, both United
States Houses of Congress to investigate Lyme Disease Diagnosis,
Testing, and Treatment protocols currently under the Center for
Disease Control (CDC), The Infectious Disease Society of America
(IDSA), the American Medical Association (AMA), and the American
Academy of Neurology (AAN).
- Warnings
- FDA Warns Consumers
and Health Care Providers Not to Use Bismacine, also known as
Chromacine - FOR IMMEDIATE RELEASE July 21, 2006
- Educational
Opportunities
- School for New Learnming
(DePaul University)- The Chronic IIIness Initiative
- http://www.snl.depaul.edu/current/chronic.asp
- Students
with chronic illnesses such as chronic fatigue syndrome, depression,
epilepsy, fibromyalgia, heart disease, lupus and rheumatoid arthritis,
among others, may take advantage of the services of the School
for New Learning’s Chronic Illness Initiative. This program
was designed to help students who have had difficulty attending
traditional programs because of relapses or unpredictable symptom
flare ups. Scholarships are available. Students who are successful
at completing School for New Learning degree requirements earn
a DePaul University degree.
-
-
- Insurance
Information
- Social
Security Online
- http://www.ssa.gov/disability
- Information
about the Social Security Disability Program
-
- Handling
Disability Examinations
- http://www.cfsdoc.org/disabil.htm
-
-
- New
Ruling Should Improve Disabled CFIDS Patients' Access to Benefits
- http://www.ssa.gov/OP_Home/rulings/di/01/SSR99-02-di-01.html
- On
April 30, 1999, the Social Security Administration (SSA) issued
a ruling clarifying that persons with medically documented CFS
can be found to have a "medically determinable impairment."
The ruling provides guidance to disability claims processors
for applying SSA policy to applications for Social Security Disability
Income (SSDI) benefits that result from disability due to CFS.
While the new ruling will hardly "open the floodgates"
for CFIDS patients to garner disability benefits, it should make
it easier for disabled CFIDS patients to acquire benefits at
an earlier stage in the SSA appeals process.
-
- West
Nile Virus Related Web site
- nationalatlas.gov
- http://www.nationalatlas.gov/virusmap.html
- Each
week, the National Atlas will include a new series of maps resulting
from ongoing West Nile Virus surveillance activities led by the
Centers for Disease Control and Prevention (CDC). West Nile Virus has emerged
in recent years in temperate regions of Europe and North America,
presenting a threat to public health, equine health, and since
1999, the health of bird populations. The most serious manifestation
of infection is fatal encephalitis (inflammation of the brain)
in humans and horses, as well as mortality in certain domestic
and wild birds
-
Lyme
Disease-Related Web Sites
- Lyme
Disease Research Studies
- http://www.columbia-lyme.org
- Formally
designated in 1994, the Lyme Disease Research Program of the
New York State Psychiatric Institute is the first in the United
States to focus research efforts on the neuropsychiatric aspects
of Chronic Lyme Disease in adults and children.
Lyme
Disease Risk Assessments
http://www.utech.net/users/10766/lyme.htm
Studies of Lyme disease done by the U.S. Army at various military
installations from 1983 to 1996.
Lyme
Disease -- The West Coast Connection
http://home.swbell.net/dsny1fan/LymeDisease.html
Educational site on Lyme disease as pertaining to the West Coast.
Includes information on tick testing, finding a Lyme specialist
and links to other useful sites.
European
Union Concerted Action on Lyme Borreliosis (EUCALB)
http://meduni09.edis.at/eucalb/index.htm
This is a site for the European scientific community to document
information on European LB and their progress toward standardization
of medical terms, concepts and research.
The
Pasteur Institute in France
http://www.pasteur.fr/english
This is an outstanding source of information on the microbiology
of spirochetes. Included is the registration of Borrelia burgdorferi
strains, substrainsand genetic codes. This is where Bb cultured
from a lone star tick from Texas and another cultured from a
flea from Texas have been characterized and registered. Information
on other spirochetes and tick-spread diseases is available.
Iowa
State University
http://www.ent.iastate.edu/ImageGallery/
Great site to view pictures and 2 second video of ticks and tick
dissection, mosquitoes, lice, lady beetles and more bugs. This
is an important viewing site.
- Lots
Of Links On Lyme Disease
- http://www.geocities.com/HotSprings/Oasis/6455/lyme-links.html
- Although
this site is no longer updated, it still provides links to over
12,000 sites on the web with information about Lyme disease.
-
- Chats
-
- Lyme
Disease Audio network
- http://www.lymediseaseaudio.com
- Lyme
Disease News & Information in Audio...WOW! The Lyme Disease
Audio Network is the place where you get the latest updates thanks
to our LIVE Lyme Talks and also, through our prerecorded audio
clips.
-
- America
Online
- Patients
and family support group. Monday nights at 8-9pm Eastern Standard
Time. Keyword "Better Health" Equal Access Cafe. Most
times there is a guest speaker. After the meeting some attendees
create a private room to just chat.
- Newsgroups
- Bulletin
boards, where anyone can post anything.
sci.bio.entomology.misc
This is an international Bulletin board (newsgroup) that is relatively
new. It is a place where entomologists (scientists that study
bugs) can post questions and answers.
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