Many
people do not understand the serious nature of Lyme disease.
We now have an opportunity to more fully educate government officials,
the media, businesses, and even the healthcare profession about
how Lyme disease can disrupt lives, cause financial hardships,
and interfere with school and work. LD patients often feel a
sense of alienation and embarrassment due to the infection and
are sometimes accused by family, friends, employers, and healthcare
professionals as wanting to have this "trendy disease"
in order to gain attention or have an excuse to malinger. Patients
can be left in medical limbo by physicians with opposing medical
views. Worse yet, healthcare professionals are at odds with each
other. Conflicts are resulting in lawsuits and medical licensing
disputes. Insurance company gatekeeping has bureaucrats and paid
consultants micromanaging the physician/patient relationship
and healthcare from a desk thousands of miles away from the patient.
We have been reduced to numbers on a page.
The
LDF is now assembling a book re-humanizing this disease from
numbers to people and their faces. You are invited to participate!
Please tell your story here - briefly and in a form easy to read.
Handwriting is OK. Your story can be on the front and back of
this form but no additional pages are allowed.
Please
do not submit your story via e-mail. Instead, print out the PDF
form below (If you do not already have Adobe Reader on your system,
you will need to download it) and mail to:
Lyme
Disease Foundation
Attn: Many Faces of Lyme Disease Campaign
1 Financial Plaza
Hartford, CT 06103
